Monday November 9, 2009 | Living with Epilepsy

November 5, 2009 at 11:15 am | Posted in Coming Up | 4 Comments

Epilepsy affects millions of Americans and each year 200,000 people are diagnosed with the affliction. People living with epilepsy must deal with radical lifestyle changes as well as a stigma that is often attached to the condition. A Monroe man is learning to live with epilepsy and he is spreading the word on how others can interact with each other, learn from each other and teach all of us a deeper understanding of the condition. He’s bringing his Epilepsy Advocate “Take Charge” tour to Charlotte, and he shares his story with us.
Guests
Don Buswell
– Epilepsy Advocate, Lecturer at “Take Charge”
Dr. Robert Nahouraii – Pediatric Neurologist, Mecklenburg Neurological Associates
Dr. Derek Chong – Assistant Professor of Clinical Neurology, Comprehensive Epilepsy Center at Columbia University

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  1. The Epilepsy Support Group, Charlotte (www.EpilepsyCharlotte.org) is a great local support resource. The group meets 7 pm, the third Tuesday of each month at Presbyterian Hospital, 200 Hawthorne Lane. The support group is open to anyone living with epilepsy, including friends and family members. For more information, check the website.

    I am a caregiver for my husband (65 yrs), who has lived with epilepsy his entire life. He is an inspiration to others.

    Thank you for the program.

  2. Please forward this to Mike Collins.

    Mike, I am an epileptic with a new life, thanks to surgery at Duke University in 2002. Thank you for your program today. Thank You, thank you, thank you for an excellent and exceptionally accurate program that opened several of the doors to the mysterious and unknown. Loved the story about the lady that had a seizure while swimming, the person who ran in fear and the janitor who saved her life.

    My life in Gastonia, NC has improved dramatically and I am currently working with Georgia Tech to establish a scholarship foundation that will support students with epilepsy. (I am a GaTech graduate in mechanical engineering; BSME and MSME.) I am sending a copy of this email to Kathy Fuller, Director of Development, Georgia Tech, 177 North Avenue, Atlanta, Georgia 30332-0220. Kathy is patiently helping
    me establish this foundation and working to publish a story about it for the GaTech alumni. Thanks, Kathy!

    I would also like to introduce Patricia and Bob Neely who started and maintain the Charlotte Epilepsy Support Group in Charlotte. This group meets once a month and discusses medications and other solutions. Often they have a guest lecturer to speak on medications and preceedures. By copy, I am forwarding this exact message to Pat and Bob (I see Pat’s message above). I would like to suggest that you contact Bob (704) 376-3158 and discuss the possibility of a second “Charlotte Talks” program that offers your audience the opportunity to join Pat and Bob’s group. Wake Forest University also supports/contributes to the CESG.

    Wouldn’t it be great to follow up your first program with several doctors, lawyers, engineers, etc. with epilepsy that have established a successful life and also have their own story to tell?

    Please feel free to contact me for information and additional suggestions.

    Frank Skinner
    VP of Engineering
    Carolina Engineering Operations
    1200 Lochshire Lane
    Gastonia, NC 28054
    (704) 691-0342 – home/office
    (704) 616-0260
    fskinner@carolina.rr.com

  3. To; Mike Collins – Host
    Windy Herkey – Executive Producer

    Thank you for Monday’s production “Living With Epilepsy”. You and your guest addressed the subject in an easy to understand laymen’s language. Epilepsy, often not talked about, continues to be misunderstood. Thank you for your contribution towards public awareness and education. Eventually, we hope to rid “epilepsy” of the stigma associated with the disorder.

    The following is a clarification and update to Mr. Skinner’s referencing the Charlotte Epilepsy Support Group.

    First, the support group is not “Pat’s & Bob’s Group”. My wife and I just happen to be very active. The support group belongs to everyone. The more involved an individual is in a support group, the stronger an organization becomes.
    Currently, the support group has 32 active members. The group formed over 20 years ago, has undergone several transitions. In approximately 2004, Dr. Amiri with Mecklenburg Neurology Group with the help of others revived the group. Since then the group has become very active and continues to be self-sustaining. We have adults living with epilepsy attending from Charlotte, Rock Hill, Gastonia, Concord, Stanley, and Cornelius.

    I have shared the program linked with all the members of the Charlotte Epilepsy Support Group and on behalf of the members, once again: Thank you for your contribution to “Epilepsy Awareness”.

    Sincerely,
    Robert Neely

    704-376-3158
    CharNCEpilepsySupport@att.net
    http://www.EpilepsyCharlotte.Org

  4. Thank you for this blog! Seriously useful info.

    I have bookmarked this and i also am looking forward to reading new articles.

    Keep up the great job!
    Thanks!!!


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